Professional Experience:
Owner, Business Advantages – Specializing in business and accounting consulting.

Personal Connection:
Grandparent to a grandson with severe hemophilia and two granddaughters with moderate/mild hemophilia.

Affiliations & Memberships:

Board Member, Missouri EMS for Children

Member, National Association of EMTs (NAEMT)

Member, EMS for Children

Home Medical Advisory Committee Member, Pediatric Pandemic Network (PPN)

Community & Volunteer Leadership:
Dedicated years of leadership and service through churches, youth groups, community initiatives, and bleeding disorder organizations, both in the U.S. and internationally.

Professional Experience:
Hemophilia Foundation of Northern California – Associate Director

Rare Patient Voice – Patient Advocate

Treatment Innovations – Peer Seeking Safety Facilitator

Personal Connection & Experience:
Patient and parent of children with severe hemophilia, hyper-mobile Ehlers-Danlos syndrome, primary adrenal insufficiency, hypothyroidism, ulcerative colitis, PTSD, traumatic brain injury, scoliosis, and extreme urticaria.

Affiliations & Leadership Roles:

Hemophilia Federation of America – Executive Board Member

Hemophilia Council of California – Advocacy Committee Member

Central California Alliance for Health – Advisory Board Member

Whole Child Model Advisory Board – Member

Professional Experience:

Arkansas RAN Ambassador for the National Organization for Rare Disorders (NORD)

Personal Connection & Experience:

One of five family members with von Willebrand Disease (VWD)

Caregiver to a loved one with Type 1 Diabetes

Advocacy & Leadership:

Community Advocate for 17 years

Member, National Hemophilia Foundation (NHF) Planning Committee

Member, Victory for Women Task Force

Panelist Speaker for VWD Families in Texas & Tennessee

Texas Women’s Retreat Planning Committee – 9 years

Past NHF Chapter Board President & Treasurer

Professional Experience:
Bachelor’s Degree in Business Management

Project Manager, Rick Shipman Construction, Inc.

Personal Connection & Experience:

Uncle to a nephew and two nieces with hemophilia

Dedicated volunteer with youth groups and international mission programs

Professional Experience:

Bachelor’s Degree in Sociology – Emphasis in Family, Health & Aging; Minor in Gerontology
Certified Massage Therapist
Certified Home Management ProviderFinancial Associate

Personal Connection & Experience:
Living with Adrenal Insufficiency

Advocacy & Leadership:
Rare Disease Advocate & Volunteer for 12 years

Played a key role in the development and passage of the State EMS Treatment Bill (SF153-2019)

Engaged in family outreach and advocacy efforts in Washington, D.C.

Professional Experience:

EMT-Paramedic – Special Operations Response Team

Protocol Review Committee Member

Research and Professional Development Contributor

Personal Connection & Experience:

Stroke survivor with PFO closure, cognitive impairment, and PTSD

Parent to a daughter diagnosed with microcephaly with neuronal migration anomalies, leading to cognitive, speech, and physical impairments, as well as epilepsy and startle-provoked epilepsy

Professional Experience:

Ph.D. in Educational Curriculum & Instruction – Emphasis in Reading, Special Education, and ESL

17 Years of Teaching Experience – K-12 and Higher Education

Author – Revisiting John Dewey: Applying What He Said 100 Years Ago to Today’s Need

Personal Connection & Experience:
Living with Adrenal Insufficiency and Epilepsy

Mother of three children, including one with adrenal insufficiency and epilepsy

Advocate for the whole child, dedicated researcher, and writer